Dr. Chris’ Autism Journal

 NEW YORK, NY (Dec 12, 2007) – Autism Speaks, the nation’s leading autism advocacy organization, today announced its Autism Treatment Network (ATN) would triple in size, expanding from five sites to fifteen sites across the United States and Canada. The ATN is a group of hospitals and medical centers dedicated to improving medical care for children and adolescents with autism spectrum disorder (ASD) and to standardizing the care those individuals receive.

The ATN’s multi-disciplinary approach includes collaboration among specialists in areas including, but not limited to, neurology, developmental pediatrics, child psychiatry, psychology, gastroenterology, genetics, metabolic disorders, and sleep disorders. The network aims to develop common clinical standards for medical care for individuals with ASD and to increase the pool of autism medical specialists through trainee mentorship and outreach to community-based physicians. As part of this effort, families receiving care at the sites can participate in a data registry that tracks children and adolescents receiving ongoing care at participating sites. The information in the database is a crucial part of developing the evidence to create and substantiate these clinical consensus standards.

“It is imperative that all children, no matter where they live, have access to excellent, evidence-based medicine,” said Autism Speaks President Mark Roithmayr. “The continuing expansion and funding of the ATN is a significant step in that direction.”

“This dramatic expansion of the Autism Treatment Network provides real opportunity to improve the quality of health care that children and youth with autism receive, and for more children to receive that care,” said Dr. James Perrin, Director, Clinical Coordinating Center, ATN, and Director, General Pediatrics, Massachusetts General Hospital for Children. “Developing common standards of medical care across fifteen sites will allow us to get answers to the questions parents ask about their children’s care much more quickly.”

The participating ATN sites are: University of Arkansas and Arkansas Children’s Hospital (Little Rock, AR); Kaiser Permanente Medical Care Program Northern California (San Jose, CA); University of Colorado Denver, School of Medicine and The Children’s Hospital (Denver, CO); Kennedy Krieger Institute and Marcus Institute (Baltimore, MD/Atlanta, GA); LADDERS/Mass General Hospital (Boston, MA); University of Missouri (Columbia, MO); Columbia University Medical Center (New York, NY); University of Rochester (Rochester, NY); Cincinnati Children’s Hospital Medical Center (Cincinnati, OH); Bloorview Kids Rehab, Surrey Place Centre and The Hospital for Sick Children (Toronto, ON, Canada); Oregon Health & Science University (Portland, OR); University of Pittsburgh (Pittsburgh, PA); Vanderbilt University Medical School (Nashville, TN); Baylor College of Medicine (Houston, TX); University of Washington (Seattle, WA).

The ATN began as a collaboration between the Northwest Autism Foundation in Oregon and Massachusetts General Hospital for Children in Boston. In 2005, the network was established with five founding sites that came together to establish multi-disciplinary practices for the evaluation and treatment of the underlying medical conditions associated with ASD. These sites currently provide services to approximately 2,000 new cases of ASD each year, and all have taken critical steps to broaden the services available to all children in these centers. The Autism Treatment Network merged with Cure Autism Now in 2006. In February 2007, Cure Autism Now merged with Autism Speaks.

To find out more about the Autism Treatment Network, or to get connected to a site in your area, visit www.autismspeaks.org/science/programs/atn/index.php or email: atn@autismspeaks.org.

The above article is reprinted with permission and can be found in its entirety at http://www.autismspeaks.org/press/atn_network_expanded.php

The winter holidays can be a difficult time for children with ASD and their families. Difficulties may arise from too much free time, changes in routine, and gift giving.

Most school-age children are off school for two to three weeks for the winter holidays, leaving six to eight hours of unstructured time for families to fill each day. You’re not alone if you dread the school holidays; past experience has taught you that a lot can go wrong in two or three weeks. If you haven’t already done so, now is the time to plan how you will structure that free time for your child with ASD. Plan activities for each day of the vacation, and create simple visual supports (e.g., print a picture of a park from the Internet if you will be taking your child to the park) to prime your child about the activities you have planned. If possible, allow your child to help decide on the activities you are planning. During the vacation, review the schedule for the day the night before and on the morning of the day to which the schedule refers. Of course, you can’t plan for everything, and you will invariably have to make changes to the schedule. Let your child know of any changes as soon as possible, and provide visual supports to make the changes concrete for your child. If your family will be traveling during the vacation, changes to the schedule such as flight delays are even more likely. Prepare your child that more than likely, there will be changes to the schedule, perhaps through the use of a social story. Don’t forget to bring an assortment of things for your child to do such as coloring, books, games, or a laptop computer.
Where your child will go and what he or she will do in a day are not the only changes that may be upsetting during the winter holidays. Many people visit with friends and relatives during this time that they rarely see during the rest of the year. These people may feel like strangers to your child, and he or she may behave accordingly. Forcing your child to hug Aunt Mary because “She came all the way from Boston to see us,” is likely to induce challenging behaviors from your child and to make Aunt Mary very uncomfortable. Aunt Mary insisting on a hug may produce similar results. Inform Aunt Mary that your child may view her as a stranger and she should not be offended before Aunt Mary arrives at your home (or you at hers). If possible, show your child pictures of friends and relatives you will visit and review the names of these people before the visit.

Many people exchange gifts during the winter holidays. This can be a source of great disappointment for family and friends of a child with ASD. As a behavior therapist, I once special ordered a beach magnet set for a child I worked with one-on-one, three hours a day, five days a week. I was sure he would love it. I imagined all the exciting language he would produce when we played with those magnets. I heard in my mind spontaneous comments he would make and squeals of delight he would emit. As you probably guessed, the boy opened the magnet set, said nothing, put it down, and picked up another toy. I tried to engage him with the magnets through my enthusiasm. Nothing worked. I have heard similar stories from parents and educators time and again. Even when the child showed intense interest in a toy when it belonged to someone else or requested the toy, the same toy is often of little interest to the child when received as a holiday gift.  As a parent, there is nothing you can do to prevent this. If you have a neurotypical child, you may have complained that he or she only played with a new toy for a day and lost interest. This is part of being a parent, but it is especially disheartening when your child is on the Autism Spectrum, has limited interests, and you worked so hard to find that special gift. Remember that your effort is special regardless of the immediate reaction to the gift. And time may reward your effort. I heard that the beach magnet set became a preferred toy for the boy I worked with over a year later.

The Department of Education recently awarded TeachTown a grant to design and develop a computer-assisted education and treatment program for autistic children with a developmental age of 6-12 years. As part of the grant requirements, TeachTown is conducting a study to assess the needs of the autism/Asperger’s community.

The study is an online survey designed for parents, teachers and clinicians who work with children diagnosed with autism or Asperger’s. We are looking for parents and professionals to provide us with their ideas and suggestions for developing an effective and motivating program. The program will include computer learning for children, as well as off-computer activities to enhance the skills they have learned on the computer. Focus will be on language, social, and cognitive skills in addition to community and life skills for this developmental age group. Once the study is completed, TeachTown will analyze the data and use the results in the design of the new computer-assisted education and treatment program.

Those who complete this survey will have the option to participate in free beta testing when this product is near completion (in 2008). To see if you are eligible for this study Click Here. If you meet the criteria, you will be forwarded to the complete survey.

If you have any questions about the study or about our company and products, please send an email to support@teachtown.com

Do you own an IPOD or other MP3 player or do you use ITUNES on your computer? There are now many PODCASTS (i.e. reports or stories that you can listen to on your computer or IPOD) about autism.

Check out our new podcast, from an interview I did with Scott Ryan from Autism Speaks in May.

AutismOneRadio is a very good podcast to try out, I like this one a lot because it brings in researchers, professionals, and parents and is done in a very professional yet interesting way. There are several different perspectives and the interviews are done by different people so there is a lot of good variety.

Autism Tales is a good one because it is actually real stories from people with autism and other special needs (or their families or people who worked with them) read by Jonathon Singer.

Bartholomew Cubbins is an interesting one that is kind of like a blog that you can listen to, he expresses his opinions about different things going on in the world of autism.

Michael Boll, a father of a child with autism and a former teacher, does Autism Podcast which is pretty interesting. In this one, Michael Boll interviews various people associated with autism such as authors of books, etc. You can check out his website too where you can get all of the podcasts and more information: http://autismpodcast.org/

There are courses that you can purchase by well-known people in the field of autism at Autism Education Online. Courses are up to two and a half hours in length and cost $49.97. If you would like to take multiple courses, the cost for a package of three is $99.97 and a package price for 12 courses is $299.

Autism Today also offers audio courses for $24.95 each.

Also, if you are interested in watching online videos about autism, I found this interesting site, Autism TV, which provides links.