If you are a parent and are looking for a great opportunity to get involved in autism research, you should check out IAN, the Interactive Autism Network. IAN was established in January 2006 at Kennedy Krieger Institute and is funded by a grant from Autism Speaks. IAN’s goal is to facilitate research that will lead to advancements in the prevention, treatment, and cure of autism spectrum disorders. Joining IAN will help you better understand the research process, help you keep up with some of the latest and most cutting-edge research findings, better understand the value of research, and even influence the direction future research.
What is IAN Research?
IAN Research allows parents of children diagnosed with an Autism Spectrum Disorder (ASD) to participate in research over the Internet. Parents provide information about their child’s diagnosis, behavior, family, environment, and services received. Parents may also report on their child’s progress over time.
Who can participate in IAN Research?
To register and answer research questions in IAN Research, you must live in the United States and be a biological or adoptive parent of a child under the age of 18 who is diagnosed professionally with one of the following disorders:
- Autism Spectrum Disorder (ASD)
- Asperger Syndrome
- Autistic Disorder
- Pervasive Developmental Disorder (PDD)
- Pervasive Developmental Disorder-Not Otherwise Specified (PDD-NOS)
- Childhood Disintegrative Disorder (CDD)
The child should not have a diagnosis of Rett Syndrome.
What are the benefits of joining?
You will be able to participate in important research on ASDs. IAN will provide tools that help you monitor your child’s progress over time and explore how your child is similar to (or different than) other children affected by this disorder.